Rare diseases film aims to raise awareness 🔎🔍
🎞️ · 12.11.2023 · 09:08:34 ··· Sonntag ⭐ 5 🎬 416
📺BBC News NI
🎬 · 12.11.2023 · 09:08:34 ··· Sonntag
😎 · 03.07.2024 · 15:40:29 ··· MiTTwoch
People with rare diseases in Northern Ireland have been sharing their stories through a series of short films.
There are more than 7,000 known rare conditions worldwide.
It is estimated that more than 110,000 people, or one in 17, are impacted by rare conditions in Northern Ireland.
The Rare Stories project explores a wide range of issues from difficulties in getting diagnosed to tackling stereotypes.
County Antrim-born twins Lucy Smyth and Zoe Buxton were diagnosed with Fibrodysplasia Ossificans Progressiva (FOP) from a young age.
This condition causes soft tissue to gradually turn to bone, creating a second skeleton that can immobilise them.
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· 12.11.2023 · 09:08:34 ··· Sonntag
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