Zoe Lain Nicholas - Age 9 - fighting CDKL5 disorder 🔎🔍
🎞️ · 03.07.2017 · 03:36:05 ··· Montag ⭐ 247 🎬 28215
📺Zoe Nicholas
🎬 · 03.07.2017 · 03:36:05 ··· Montag
😎 · 03.07.2024 · 15:40:29 ··· MiTTwoch
Made for Zoe Lain on her 9th birthday, with overflowing love and pride, by her dad. Zoe suffers from CDKL5 disorder. This video represents her best moments and milestones from age 8-9. With each of these videos there is always something new and special to see. This year it is Zoe's progress with communication and independent walking. She has learned her first sign language sign - for "eat" - and also how to use it appropriately to indicate when she is hungry. You will also see how her independent walking is improving, if only modestly. She is now requiring less assistance with balance as she takes steps. She has also shown improvement with keeping her balance while standing still on her feet, grasping objects, waving "hi", and vocalizing a few words including "hi". (You'll also notice that Zoe is wearing casts in some scenes - she did serial casting this year in order to help her feet and ankles back into an appropriate position.)
For those who may not know, CDKL5 disorder is an extremely rare genetic disorder causing very serious developmental delays, seizures, gastrointestinal issues, and a host of other complications. There are currently no treatments and no cure. If you'd like to support research and hope for a healthier future, please visit http://www.CDKL5.com or http://www.CDKL5UK.org to make a donation in Zoe's name.
Music: "High On Love" by Class Actress.
Video and images taken on an iPhone 6, iPhone 7 and a Canon 7D from July 2016 - June 2017. Edited using Final Cut Pro X.
We kindly ask that any/all images shown here are not used without permission. Images: Copyright 2017 to Mark Nicholas.
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