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Zoe Lain Nicholas - Age 8 - fighting CDKL5
· 19.07.2016 · 05:34:33 ··· Dienstag ⭐ 153 🎬 18011
📺 Zoe Nicholas
Made for Zoe Lain on her 8th birthday, with tremendous love and pride, by her dad. Zoe suffers from CDKL5 disorder. This video represents her best moments and milestones from age 7-8. With each of these videos there is always something new and special to see. This year it is Zoe's tremendous progress with walking. She has gained a much better sense of balance on her feet, and has made huge strides with the various types of coordination necessary to take steps. You will see over the course of the video just how dramatically her walking improved, from heavily assisted, so lightly assisted, and just a couple of months ago, taking her first independent steps (an accomplishment which she is now able to repeat on a daily basis - given time to find her balance before she begins, 4-5 independent steps appears to be a permanent skill in Zoe's skill set.)
For those who may not know, CDKL5 disorder is an extremely rare genetic disorder causing very serious developmental delays, seizures, gastrointestinal issues, and a host of other complications. There are currently no treatments and no cure. If you'd like to support research and hope for a healthier future, please visit http://www.CDKL5.com or http://www.CDKL5UK.org to make a donation in Zoe's name.
Music: "Shake It Off" by Taylor Swift. (This year also marked the first time Zoe expressed a very clear and strong musical preference, and that preference is for songs from Taylor Swift's album 1989!)
Video and images taken on an iPhone 6/6S and a Canon 7D from July 2015 - June 2016. Edited using Final Cut Pro X.
We kindly ask that any/all images shown here are not used without permission. Images: Copyright 2016 to Mark Nicholas.
· 19.07.2016 · 05:34:33 ··· Dienstag
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