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Zoe Lain Nicholas - Age 12 - fighting CDKL5 Deficiency Disorder (CDD)

· 29.06.2020 · 05:29:27 ··· Montag ⭐ 112 🎬 5103 📺 Zoe Nicholas
Made for Zoe Lain on her 12th birthday, with overflowing love and pride, by her dad. Zoe suffers from CDKL5 Deficiency Disorder. This video represents her best moments and milestones from age 10-12. With each of these videos there is always something new and special to see. This time you will see her independent walking is improving as she has begun to navigate some major turns and obstacles. She has also shown improvement with the use of her hands and grip, beginning to guide her own spoon to eat, as well as improved targeting of objects that she is interested in.

For those who may not know, CDKL5 deficiency disorder is an extremely rare genetic disorder causing very serious developmental delays, seizures, gastrointestinal issues, and a host of other complications. There are currently no treatments and no cure. If you'd like to support research and hope for a healthier future, please visit http://www.CDKL5.com or http://www.CDKL5UK.org to make a donation in Zoe's name.

Music: "Powder Blue / Cascine Park" by Yumi Zouma.

Video and images taken on an iPhone 8, iPhone X, and iPhone X Pro from July 2017 - June 2020. Edited using Adobe Premiere Pro 2020.

We kindly ask that any/all images shown here are not used without permission. Images: Copyright 2020 to Mark Nicholas.

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