Zoe Lain Nicholas - Age 7 - fighting CDKL5 🔎🔍
🎞️ · 28.06.2015 · 07:42:37 ··· Sonntag ⭐ 315 🎬 64825
📺Zoe Nicholas
🎬 · 28.06.2015 · 07:42:37 ··· Sonntag
😎 · 03.07.2024 · 15:40:29 ··· MiTTwoch
Made for Zoe Lain on her 7th birthday, with joy and tears, by her dad. Zoe suffers from CDKL5 disorder. This video represents her best moments and milestones from ages 5-7. With each of these videos there is always something new and special to see. This year it is Zoe's presence. She has gained a much better awareness of her surroundings, visually and otherwise, and now truly enjoys interacting with them however she can - even if her ability to do that is often very limited by the CDKL5 disorder. (A good example: When she sees something she can knock down, she will now find a way to do it - like all of those towers of blocks!)
For those who may not know, CDKL5 disorder is an extremely rare genetic disorder causing very serious developmental delays, seizures, gastrointestinal issues, and a host of other complications. There are currently no treatments and no cure. If you'd like to support research and hope for a healthier future, please visit http://www.CDKL5.com or http://www.CDKL5UK.org to make a donation in Zoe's name.
Music: "Will You Dance?" by The Bird and the Bee.
Video and images taken on an iPhone 5/5S and a Canon 7D from July 2013 - June 2015. Edited using Final Cut Pro X.
We kindly ask that any/all images shown here are not used without permission. Images: Copyright 2015 to Mark Nicholas.
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· 28.06.2015 · 07:42:37 ··· Sonntag
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