randagillihan22
1:: Merry Christmas 2020!
25.12.2020 · 17:59:06 ··· 25.12.2020 · 17:59:06 ··· 03.07.2024 · 15:40:29 ··· ··· ··· ··· ··· ··· Happy holiday's!
2:: Thanksgiving Road Trip To Arkansas 2020
29.11.2020 · 00:48:31 ··· 29.11.2020 · 00:48:31 ··· 03.07.2024 · 15:40:29 ··· ··· ··· ··· ··· ··· Great seeing everyone! Happy holidays! we love you!
3:: Thanksgiving Road Trip To Arkansas
29.11.2020 · 00:36:34 ··· 29.11.2020 · 00:36:34 ··· 03.07.2024 · 15:40:29 ··· ··· ··· ··· ··· ··· Thanksgiving on Twin Creek November 2020. Mom got a new cat named Boomer. Brayden beat me playing horse. Jeff is a good quick shot. We ALL ate great food. Found a level 3 large geocache. Even though we all whine and complain about pictures....I'm really glad we got these! Happy holidays!
4:: Possible new seizure activity
20.04.2020 · 21:00:19 ··· 20.04.2020 · 21:00:19 ··· 03.07.2024 · 15:40:29 ··· ··· ··· ··· ··· ··· For Dr. Burris
5:: Time Traveler 2004
15.07.2019 · 00:37:47 ··· 15.07.2019 · 00:37:47 ··· 03.07.2024 · 15:40:29 ··· ··· ··· ··· ··· ··· My kid thinks shes funny.
6:: Day 20-23 after spinal fusion! Still doing good!
14.06.2019 · 01:10:47 ··· 14.06.2019 · 01:10:47 ··· 03.07.2024 · 15:40:29 ··· ··· ··· ··· ··· ··· I still can't believe she's doing so well. Can't wait to take baths again and go swimming! Angelman syndrome, Del+, age 13.
7:: Crawling in bed on her own! Day 22 post op.
13.06.2019 · 02:48:43 ··· 13.06.2019 · 02:48:43 ··· 03.07.2024 · 15:40:29 ··· ··· ··· ··· ··· ··· Small improvements every day! Baby steps! She has not been able to get in her bed alone until tonight. I was washing dishes and it seemed to quiet in the house. Walked in her room and she was straight chillin in her bed, like she didnt just have spinal fusion surgery 22 days ago. I'm so proud! #angelmansyndrome #AJtheAngel Age 13, Del+.
8:: Day 14! - Trip to Kroger and walking in the driveway.
05.06.2019 · 02:55:53 ··· 05.06.2019 · 02:55:53 ··· 03.07.2024 · 15:40:29 ··· ··· ··· ··· ··· ··· Day 14, post OP, spinal fusion. #AngelmanSyndrome #AJtheAngel #Del+
9:: Day 10 - Fresh Air!
31.05.2019 · 03:12:43 ··· 31.05.2019 · 03:12:43 ··· 03.07.2024 · 15:40:29 ··· ··· ··· ··· ··· ··· #angelmansyndrome #del+ #AJtheAngel
10:: Day 5 - More Walking!
25.05.2019 · 23:40:26 ··· 25.05.2019 · 23:40:26 ··· 03.07.2024 · 15:40:29 ··· ··· ··· ··· ··· ··· She wanted to walk again!
11:: 5 Days Post OP Spinal Fusion!
25.05.2019 · 21:43:58 ··· 25.05.2019 · 21:43:58 ··· 03.07.2024 · 15:40:29 ··· ··· ··· ··· ··· ··· I can't believe it. But she wanted to walk!! #AJtheAngel #Angelmansyndrome
12:: Day 3 Update - PROGRESS!
22.05.2019 · 23:38:57 ··· 22.05.2019 · 23:38:57 ··· 03.07.2024 · 15:40:29 ··· ··· ··· ··· ··· ··· We finally graduated out of ICU! #Angelmansyndrome #AJtheAngel
13:: Update on AJ after spinal fusion, 5/21/19-DAY 2
21.05.2019 · 16:26:48 ··· 21.05.2019 · 16:26:48 ··· 03.07.2024 · 15:40:29 ··· ··· ··· ··· ··· ··· Thank you to everyone who has tried to contact me. Apologies if I haven't responded. She is slowly improving. #AJtheAngel #angelmansyndrome
14:: Mae goofing off April 2019
05.04.2019 · 12:08:04 ··· 05.04.2019 · 12:08:04 ··· 03.07.2024 · 15:40:29 ··· ··· ··· ··· ··· ··· Mabry just being Mabry. Time slow down! Age 13.
15:: Beth Hart 4/4/19 Houston, Texas
05.04.2019 · 12:06:31 ··· 05.04.2019 · 12:06:31 ··· 03.07.2024 · 15:40:29 ··· ··· ··· ··· ··· ··· Another awesome Beth Hart performance at The Revention Center in Houston, TX, 4/4/19. Incredible, as always.
16:: Tired and Fighting Angel March 2018
13.03.2018 · 03:35:39 ··· 13.03.2018 · 03:35:39 ··· 03.07.2024 · 15:40:29 ··· ··· ··· ··· ··· ··· Lord, she gave us a run for our money tonight! Angelman syndrome, age 11, almost 12, Del+, 4 days post op.
17:: Sleepover Dance Party in Onsies
10.12.2016 · 00:00:00 ··· 10.12.2016 · 00:00:00 ··· 03.07.2024 · 15:40:29 ··· ··· ··· ··· ··· ··· Ages 10, 10, and 8. 15 days til Christmas. Addy wants a sewing machine, Mae wants an apple product of any kind, and AJ just wants to be tickled. :) Angelman syndrome, Del +.
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