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Zoe Nicholas - Local news story #1 - Diagnosed with CDKL5
· 18.01.2011 · 01:44:07 ··· Dienstag ⭐ 26 🎬 7536
📺 Zoe Nicholas
The first of three local news stories about our daughter Zoe. Zoe suffers from an extremely rare genetic disorder called CDKL5. She suffers from painful epileptic seizures and infantile spasms, she is cortically blind, has unresponsive hearing, almost no use of her hands, can not eat normal foods of any kind, and the list goes on and on. We spent years searching for this diagnosis. Now that we finally have one, we have learned there are currently no treatments and very little research being done for this only recently discovered genetic disorder. As you can imagine, we desperately want to help Zoe be all that she can possibly be. If you are moved by her story, please do not hesitate to go to cdkl5 dot com and make a donation to IFCR for research to help us find a cure.
· 18.01.2011 · 01:44:07 ··· Dienstag
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